Teenagers “Are Not” Too Young To Have Endometriosis

Posted on March 5, 2019November 26, 2019 by Andrew Orr

Teenagers are not too young to have endometriosis. Many teenagers and young women are missed and dismissed when they mention they have period pain. Period pain may be a sign that a young woman has endometriosis.

Endometriosis has been found in very young girls, especially as some are getting their period as young as 9 years old, or younger. They have found endometriosis in girls as young as 7 years old when looking for causes of abdominal pain.

Endometriosis and The Causes of Period Pain Can Be Hereditary

Just remember that endometriosis can be hereditary and if someone in your family, or yourself, has endometriosis, or has bad period pain, then there is a good chance a daughter could have this problem too.

Early Intervention and Treatment is Crucial

Early intervention is the key to treating and managing this disease. If your daughter is experiencing period pain, you need to see someone who specialises in endometriosis not just your GP. Do not ever be fobbed off by any healthcare practitioner, or just get told to put the young girl on the pill.

I often get really upset hearing stories of young girls told that they are too young to have endometriosis, or that period pain is normal and just to put up with it.

Young girls are often told to put up with the pain, go on the pill and “We will deal with it when you are ready to have children”

The problem with BS statements like this is that the longer the disease is left there the more damage it can do internally. By not getting early intervention and the right treatment early enough, it could also affect a young girl’s future fertility and potential to even have children. It makes me so angry hearing things like this.

Contraceptive Hormones Do Not Fix Endometriosis

The pill does not regulate menstrual cycles and it can mask and then exacerbate conditions such as endometriosis. The pill does not regulate a proper menstrual cycle. The pill causes a withdrawal bleed and not a proper period. Women with endometriosis need certain types of hormones to help with the suppression of the disease, but only after proper investigation, diagnosis and treatment of the disease first.

Make sure that young girls are properly assessed for the causes of period pain and then managed properly moving forward. Period pain is not normal and young women can be suffering endometriosis.

No matter what anyone tells you, teenagers are not too young to have gynaecological issues such as Endometriosis and PCOS.

We Need To Stop Telling Women That Period Pain is Normal

We need to stop telling young women that things like period pain, irregular periods and absent periods etc are normal. They are far from normal and early intervention and early management could save them a lifetime of heartache and fertility issues later on.

There Is Help Out There

If your daughter is experiencing period pain, or there is a chance that she may in fact have endometriosis and she needs help, please call my staff and find out more about how I may be able to assist you in getting your daughter the right care and management moving forward.

Take care

Regards

Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Advocate

-The Endometriosis Experts

-The Women’s Health Experts

The Only Way To Definitively Diagnose Endometriosis Is Via Surgical Intervention–

Posted on March 5, 2019September 9, 2019 by Andrew Orr

The only way to definitively diagnose endometriosis and the causes of period pain is via surgical intervention. Scans, blood tests etc do not diagnose endometriosis. You cannot have a scan to diagnose endometriosis and you cannot have a blood test to diagnose endometriosis either.

The definitive diagnosis of endometriosis needs to be done via a laparoscopy

The definitive diagnose ‘is’ and ‘always will be’ via a laparoscopy/laparotomy, along with histology (biopsy) and tissue samples taken to examine. Most times a hysteroscopy is done at the same time and if there is an evaluation for fertility, dye studies for tubal patency will be done at the same time.

Women with endometriosis need to see an Advanced Trained Laparoscopic Surgeon

A laparoscopy is the goal standard investigation of examining the pelvis and for investigating gynaecological disorders such as endometriosis. The laparoscopy also needs to be done by what we call an Advanced Trained Laparoscopic Surgeon, who has extra years of surgical training, and who specialises in this disease and specialises in the excision of endometriosis.

It can’t just be done by a regular obstetrician/gynaecologist and this is where many go wrong. Many women just haven’t seen the right surgeon first up who has he proper skills to deal with endometriosis effectively. The first surgery should always be your best surgery and early intervention and management of this disease is crucial. The longer it is there, the worse it can become.

Ultrasounds and Bloods Tests etc Cannot Diagnose Endometriosis

All too often I get women telling me that they do not have endometriosis because their doctor has ruled it out via an ultrasound, or blood test. This is so distressing to hear and this is why so many women are missed and dismissed with this horrible disease that affects 1 in 10 women world wide.

Endometriosis Management Requires a Multi-modality Approach

But, please know that surgery does not cure endometriosis. It is just the first stage in the management of the disease and the active lesions that have been expressed and are present now. Endometriosis can, and will return for many suffers and this is why endometriosis needs ongoing care and a multimodality approach to treat it effectively. It needs a team to manage it properly. While surgery is an important part of evaluation, management and diagnosis of endometriosis, it is to help with symptomatic pain and then other treatments are needed to suppress the disease from further developing and also managing ongoing symptoms.

If you need help with period pain, or assistance with endometriosis, please give my clinic staff a call and find out more about how I may be able to assist you.

Regards

Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Advocate

-The Endometriosis Experts

Period Pain IS NOT Normal

Posted on March 4, 2019September 9, 2019 by Andrew Orr

We need all women, and men, to know that Period Pain ‘is not’ normal and it is about time healthcare professionals knew this as well. We are getting there, but it is not quick enough for my liking.

Millions of women around the world are told that period pain is normal and then go on to endure years of suffering and even fertility issues because it. Some women have endured so much pain and been “missed” and “dismissed” by so many healthcare professionals so many times that they have ended up taking their own life because of it. It just should not happen and it needs to stop.

Endometriosis & Adenomyosis are a major cause of Period Pain

One of the major causes of period pain is Endometriosis, or its sister disease Adenomyosis. These crippling diseases can cause period pain, pelvic pain, joint pain, pain with bowel movement, irritable bowel syndrome, pain with ovulation, swollen painful belly (known as endo belly), chronic fatigue, anaemia, heavy painful menstrual flow and can lead to infertility. Some women will quite literally not even be able to work due to debilitating symptoms of this disease.

A significant portion of women with endometriosis are asymptomatic

One thing to note is that some many women with endometriosis get lots of pain and associated symptoms, a significant portion of women with endometriosis are actually asymptomatic (No symptoms at all). These women are usually diagnosed by accident or through fertility evaluation when they could be having issues conceiving. Just remember that just because a woman does not have pain and associated symptoms of endometriosis, it does not mean that she can’t have it.

Period Pain ‘is not’ Normal

Period pain ‘is not’ normal and the sooner we get everyone to know this important fact the better. Sure, a little bit of discomfort can be normal. By that I mean just a tiny bit of pressure and basically knowing your period is about to come. But pain…. That is not normal.

I’ve spoken about this many times before and if you click on the links below here, you can read my previous articles about this

There is help

If you, your friend, your daughter, your sister, your wife, or any other woman you know, has to have days off work, days of school, is laying on the floor in pain, taking pain killers to get through the day, or beginning of their period, then that IS NOT normal.

Period pain is not normal and if you need help and assistance with period pain, then please give my friendly clinic staff a call and find out more about how I may be able to assist you.

Regards

Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Advocate

-The Endometriosis Experts

-The Women’s Health Experts

Endometriosis Awareness Month March 2019

Posted on March 1, 2019March 1, 2019 by Andrew Orr

Dr Andrew Orr has an honest and open talk about Endometriosis Awareness Month and also about the disease itself.

Dr Andrew Orr talks about the facts, the myths and what women with endometriosis go through on a daily basis.

He also discussed that there is help out there and what is needed in a multi-modality (team like) approach to care and ongoing management of the disease

Lastly, he wants every women, and man, to know that Period Pain IS NOT Normal and that women do not need to suffer in silence. There is always help out there and you just have to find the right people who will care, listen and help you in every aspect that you need.

Dr Andrew Orr has a special interest in Endometriosis and does research and lecturers about this horrible disease that affects 1 in 10 women world wide. If you do need help with period pain, or endometriosis and the associated symptoms, please give his clinic a call. Please do not suffer in silence alone. There is help out there. Dr Andrew Orr’s motto is “No Stone Left Unturned” and he uses this to assist all his patients.

Take care

Regards

Dr Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Expert

01 Dr Andrew Orr 1

Living With Pain.

Posted on February 26, 2019February 26, 2019 by Andrew Orr

There are lots of people who suffer with pain daily and the one thing I do know for sure, as do many professionals I work with, is that many people who are in pain, or have inflammatory pain conditions, are not being managed really well.

There are so many aspects to pain and so many drivers that make it worse. Everything we do and are exposed to daily can drive, or exacerbate pain. Diet, lifestyle, alcohol, stress, drugs, medications, our environment, chemicals, additives, bad bacteria, disease states, moods and the way we think etc, can all drive and exacerbate pain.

In previous blogs and articles I have explained about how pain works, how long term medications can actually make it worse and also some of the alternatives to some of the hard-core pain medications.

Again in this video I talk about pain and want to let everyone know there is help out there to help you better manage pain.

Please know you do not have to do this alone and that there are professionals out there who can help you better manage your pain levels and get your quality of life back.

If you do need help and assistance in dealing with pain, please give my clinic a call and book in a consultation.

Take care

Regards

Dr Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Expert

01 Dr Andrew Orr 1

Endometriosis a burden on women’s lives

Posted on January 30, 2019September 9, 2019 by Andrew Orr

Research published in the Journal of Family Planning and Reproductive Health Care found that endometriosis affects women’s sex lives, personal relationships, work life, and emotional well-being.

Endometriosis often takes a long time to be diagnosed and affects all areas of a women’s life, a study has found. Endometriosis is a chronic, recurring disease that is experienced by approximately 10 per cent of women worldwide. This number could be greatly understated as many women have not being diagnosed properly and many women still think period pain is normal.

But, while period pain is part of endometriosis, a significant portion of women with endometriosis are asymptomatic (meaning no symptoms) and only get diagnosed when there is a need for fertility treatment.

Common symptoms include of Endometriosis
• Painful menstruation,
• Heavy menstrual bleeding,
• Painful sex
• IBS like symptoms
• Bladder issues (UTI like symptoms)
• Ovulation Pain
• Pain with bowel movement
• Chronic Fatigue
• Infertility

The Research Unit at the School of Public Health and Preventive Medicine, reviewed a number of papers that documented women’s experiences of endometriosis. The most common theme was that women had experienced delays in diagnosis.

Many women feel they are being dismissed and this is evident in the fact that it often takes up to “10 years, or more” for women to be diagnosed properly.

The study found that women were more likely to be diagnosed sooner when they approached their doctor describing symptoms as fertility-related rather than a menstrual issue.

The study showed that some women initially delayed seeking help for their symptoms because they believed all women had painful periods. When women revealed their symptoms to a family member, friend or medical professional their experiences were typically normalised as being what all women must endure. Period pain is not normal and all women need to know this.

The study also found that women often felt frustrated and angry at unsatisfactory experiences with healthcare providers, and had concerns about the effectiveness and side effects of treatments.

Women want their doctors to really listen to their experience and concerns. They want to explain the true impact of the condition on their lives, rather than simply rank their pain on a scale from one to 10, or be dismissed each time they try to have their doctor listen to what they are going through on a daily basis.

The study found that further research was needed to gain a comprehensive understanding of endometriosis as experienced by diverse groups of women.

This research will contribute to the improved health care of women with endometriosis in Australia, and around the world.

Too many women being ‘missed’ and ‘dismissed’

I see so many women who have been misdiagnosed, had symptoms missed and been dismissed for years and seen multiple healthcare practitioners, both medical and complementary.

There are clear-cut signs and symptoms that point to endometriosis and we need for healthcare practitioners to start to know this. We also need for practitioners and the public to know that endometriosis can only be diagnosed by a laparoscopy (surgical intervention) and that scans and blood tests, do not diagnose endometriosis.

Lastly, my message to all women is ….. “Period Pain IS NOT Normal” and people need to stop telling women it is.

There is too much BS out there about endometriosis and we need all women and all healthcare practitioners to start knowing the facts. 10 years, or more, to a diagnosis is unacceptable for any health condition. It means many women are being ‘missed’ and ‘dismissed’ along the way. Let’s put an end to Endometriosis.

If you do need help with period pain, or help managing endometriosis properly, then please call my friendly clinic staff and find out how I may be able to assist you.

Regards

Andrew Orr

-The Endometriosis Experts

-The Women’s Health Experts

-No Stone Left Unturned

Insights into Endometriosis

Posted on November 29, 2018September 8, 2019 by Andrew Orr

Previously I posted a story about endometriosis being aired on SBS television. I am sure many people watched it and it is great to see that sufferers are finally being recognised. It is important that sufferers are finally being recognised and that there is more education about this disease.

But, is education and awareness enough?

Well, ‘yes’ and ‘no’. I always say this when I am asked this question. Yes, it is great to get education and awareness out there, but what are we doing to support those who are struggling daily?

Any education and awareness about this horrible disease is great. It is a huge win for sufferers when we do see programs go to air and aren’t scared to ask people their experiences of living with a disease state.

I do think those that were involved and those that are driving this awareness need to be applauded. Getting media to listen is one of the best ways to bring awareness to the disease states such as endometriosis.

While there was lots of information shared, I do believe more could have been talked about. I was a little disappointed to hear that the opening line was more about associating endometriosis and periods. We know endometriosis and its symptoms can be there daily, not just around the menses. But, it does open up discussion for more programs and media recognition for those with endometriosis, or any gynaecological condition really.

I’ll talk about the good things, the not so good things and everything in between. Let’ have a look what was talked about and some of the things that should have been talked about as well. I do realise time constraint mean that not everything can be talked about either.

The important things that were talked about

Millions of women world-wide suffer this disease
Millions of suffers do have a wide range of symptoms that vary with each individual
Period Pain IS NOT Normal
There is no cure for endometriosis
Millions of women world-wide have been led to believe their symptoms are normal, when they aren’t
Women are being missed and dismissed daily and told to basically suck it up
Many women take more than 10 years to be diagnosed
GP’s and other healthcare people are missing the disease and also failing to refer on
Many women are misdiagnosed for other disease states such as IBS, gastro etc
When presenting for medical help, many women are told they just have a gastro virus, or it may be an ectopic pregnancy
Endometriosis affects the daily life of sufferers and their partners and family as well
Partners can be affected by watching their loved one go through this disease state
Intimacy and a happy healthy sex life can be hard for sufferers due to pain and associated symptoms
Many endometriosis sufferers have to take pain killers daily, just to get through their day
Endometriosis requires a laparoscopy to be diagnosed
Scans and blood tests cannot diagnose endometriosis
Women need a highly specialised surgeon when needing to have the disease diagnosed and cut out
Despite the best medical treatments available, women are still in pain daily
Many women will require multiple surgeries to deal with endometriosis
Despite multiple surgeries, women are still in pain and have all the associated symptoms of endometriosis.
Women will need hormones, pain medications, pain management and psychiatric help dealing to be able to deal with endometriosis
Often pain and associated symptoms are not managed well at all
Women who suffer endometriosis are holding down jobs and many people are unaware they are suffering this disease
Many women with endometriosis cannot hold down fulltime employment either
Women are not being told the facts about endometriosis
Many healthcare practitioner do not know the facts about endometriosis
Women of all shapes, sizes and colour have endometriosis
Endometriosis is just as common as many other well-known disease states, yet little is known about it.
Complementary medicines such as acupuncture and Chinese medicine may help women with endometriosis (although this was brushed over very quickly)
Genetics/hereditary links are now known to be a big part in the disease expression

Important things that were not talked about

Endometriosis pain and associated symptoms do not just happen around the menses
A significant portion of women with endometriosis are asymptomatic (meaning no symptoms) and are only diagnosed through needing to assess for other issues such as fertility investigations
Not all women with endometriosis will experience fertility issues
Pregnancy does not cure endometriosis
Hysterectomy does not cure endometriosis
Endometriosis is Estrogen driven and not caused by estrogen dominance
Progesterone in suppressive to the disease
Pain levels are not related to the extent of the disease
Teenagers are not too young to have endometriosis
Certain combined contraceptive Pills that contain estrogen, could be making the disease worse, or in fact helping mask and then drive the disease
The facts around endometriosis need to be standardised and more freely available
Despite the best medical treatment not working for some women, we need to educate about other alternatives, including complementary therapies
Women with endometriosis do need a multimodality (team) approach to manage their disease state and daily symptoms
There needs to be better funding to help women access all services they need for endometriosis and the associated symptoms
Too much surgery can be just as bad as not having surgery
The first surgery should always be a sufferer’s best surgery
Women with endometriosis need to see and advanced trained laparoscopic surgeon who specialises in endometriosis and is an excision specialist.
Not all gynaecologists are advanced trained and not all gynaecologist will be able to effectively manage endometriosis
Most of the good advanced trained surgeons do not do public work. Some do limited work, most don’t.
Women and healthcare practitioners need to be educated about the facts are endometriosis
GP’s and other healthcare providers who are the first point of call for women, should be better educated about endometriosis and the associated symptoms
Women with endometriosis can have adenomyosis, PCOS and other gynaecological diseases at the same time
Women who suffer bad symptoms of endometriosis have contemplated suicide, or had suicidal thoughts
Women with endometriosis will require help with depression, anxiety and other mood disorders
Many women with endometriosis are addicted to pain medications and opiates and are not monitored , or managed well
Many women cannot function without some of the pain medications and the alternatives that are not as addictive need to be discussed
Diet and lifestyle changes can help with reducing the symptoms of endometriosis and may help with reducing some of the inflammation driving the disease
Healthy gut bacteria and restoring the microbiome can help with some of the symptoms associated with endometriosis and the inflammatory processes around endometriosis
Exercise may assist with the symptoms of endometriosis

There are probably many other things that need to be discussed, but, for now this is a great start. Any awareness is a great outcome and again those that were involved need to be applauded and commended. The sufferers, the specialists, the partners, the families, the media people and everyone involved deserve to be praised for this story. We now just need to take it to the next level of education and awareness for the sake of those and their families that suffer from this horrible disease.

There is no cure for endometriosis and even with surgery and the best medical interventions; women will still suffer the daily consequences of the disease. The best way to treat and clinically manage endometriosis is with a multimodality (team) approach that requires many different modalities and medicines. While there is no cure, with the right interventions and management women can become asymptomatic (meaning no symptoms). We now just need governments to provide better funding to this with endometriosis and those who will ultimately be involved in their care.

Let’s hope that with awareness and education, this brings further funding and changes. We also need for more programs to be aired on the media to talk about what women with endometriosis can do to manage their disease better and where to access the help they so desperately need.

Take care

Regards

Andrew Orr

– No Stone Left Unturned

– The Endometriosis Experts

– Women’s and Men’s Health Advocate

Are we really doing enough for women with Endometriosis?

Posted on September 18, 2018September 7, 2019 by Andrew Orr

I often myself “Are we really doing enough for women with Endometriosis?”

That is a hard question to answer in one way, but easy to answer in others. But, the bottom line is that we really aren’t doing enough for women with this terrible disease.

Now, before I continue and start with what I am about to stay and before anyone takes this the wrong way and gets upset (which isn’t my intent), let’s look at the positives around endometriosis.

There has been more awareness of the disease than ever before and awareness brings about change. But unfortunately that change can also be slow. But, it is a step forward in the right direction. At least there is now some government recognition is some countries like Australia. It is about time though and we need all countries to step up on this front. Governments also need to do more, including ours here.

Yes, we have surgical interventions, pain killers and hormones to help those who suffer the disease. All of these things, either in isolation, or in combination can help women with the disease. Some women even become asymptomatic (meaning no symptoms), after certain interventions, or a combination of all interventions combined. That is what we would like for all women with endometriosis.

Surgical intervention can control active lesions and the inflammation and symptoms they cause. Pain meds can help control pain, but after a while women will need stronger pain meds to control the pain. The body will get used to the level of pain meds and there are also high side effect profiles. Hormones such as progestins and GnRH agonists can help with the control of symptoms, help with pain and inflammation and also help with the suppression of microscopic and active lesions. But, again it isn’t enough.

We know that despite the current medical model of treatment that women are still being missed and dismissed, women are still in pain, women are still having numerous symptoms, women are having high levels of anxiety, basic bodily functions are being denied or hard to achieve, and women are being offered multiple surgeries, because that is all that the medical model can provide for them. That is the pinnacle and once that is reached, then this leaves very little options left.

Women are then offered radicle treatments and removal of body parts and that is not the answer to their often horrible daily journey either. Hysterectomy does not cure endometriosis, not at all. But it is still being offered as such by the ignorant, ego driven and uneducated out there still. Sure, it can stop you having a menstrual cycle. Sure it can help with symptoms associated with the menses.

The trouble is that many women that get relief from hysterectomy actually have adenomyosis as well, or in isolation (usually missed diagnosed or missed completely), which a hysterectomy will help, and these symptoms are then controlled permanently by this procedure. But, the problem then is that these women think that their endometriosis is gone and cured. Not so.

If endometriosis has been diagnosed, it will still be there and it can still cause inflammation, and flares, and gastrointestinal symptoms, destabilise moods, causes endo belly, still spread throughout the body, still wreak havoc on bodily functions and most likely still need interventions of some sort.

Many women with the disease are at the point on suicide some days; let alone asking them to undergo reproductive suicide. I am sorry to put it so bluntly, but that is what it is. I have seen young women who have being told that the only way to cure their endometriosis is to undergo reproductive suicide and permanently halt their chance at having a family, all due to ignorance and being told BS, heartless, unethical statements like that.

Just go and chop out your uterus and you will feel better they say. No woman should ever be faced with that option because there are ways to manage this disease that many have not even been told about, or even begun to explore.

I want every woman to know that hysterectomy does not cure endometriosis and that is a fact. I also want women to know there are options for a normal life, outside the current medical model, or to be used in conjunction with the medical model.

The other issue is that like the fashion industry and their assault of women through marketing, we also have pharmaceutical companies trying to mislead women to believe they have the latest and greatest “fix all” pill for their endometriosis. Again, much of that is just over marketed hype and remarketing of medications and hormones that we already have and are just being sold under another patent and another name.

Many women work out very quickly that the benefits being marketed are not forthcoming and are again left with the feeling of despair. I would love to see a new medication to help women. I would love to see the cure all pill appear on the market, but unfortunately there is no such thing, it does not exist and probably will not exist in the near future either.

We also now have women basically addicted to pain medication, because without them, they cannot function in a day to day life. This then leads to judgment by many and we are now seeing women being viewed as ‘druggies’ so to speak. Many women are also being questioned at pharmacies, even when they have a doctor’s script.

We also have medical centre GP’s refusing women pain medication because they just have not listened to the women and her symptoms and that she in fact has endometriosis. All they hear is “Here is another addict trying to get pain meds”.

No, this woman is in pain and you are not listening to her, or even able to understand the level of distress and pain she is in daily. Sure, pain meds are addictive and they have side effects, but what other options do we have for these poor women? Until someone comes up with a better solution, on a medical level, then this is what women with endometriosis have to do in order to survive their day.

So, yes, while we have come far in awareness and recognition etc, which we desperately need, but we are still stuck in the dark ages as far as medical diagnosis, disease classification, interventions and true clinical and overall health management of the disease.

What women with endometriosis need is an individualised, case by case, individualised, multidisciplinary approach to fully treat and manage the disease but this is not happening. Much of this is due to ego, certain marketing, suppression of research by pharmaceutical interests, lack of funding, lack of education, lack of awareness and people not willing to research or explore new ideas around this disease that don’t fit the model they want to explore, or believe.

There are ways to treat this disease effectively and it requires a multi-modality approach to do so. It requires the team approach that I always talk about. There is good research and evidence out there to suggest that there are some great treatments and management options outside the medical model, which can also be used alongside medical options to enhance treatments and overall health for those with endometriosis.

We just need more education, more research, more funding, more open mindedness, less suppression of research and education by those with monetary interests in certain areas of medicine, more subsidisation for affordable treatment options and certain people letting go of old belief systems and ego so that new thought processes and education can occur.

While awareness is great and it brings recognition to those with the disease, we also need to then give those same people ways to manage and treat the disease as well and stop viewing these women and druggies, or hypochondriacs, just because the medical system hasn’t caught up with what these women actually go through and what they need to live on a day to day basis.

I’ll talk about some other options for the treatment and management of endometriosis in some upcoming posts. In the meantime please know there are better ways to manage this disease and while I would love for there to be a “one pill” or “one treatment fix all’ approach, I am sorry but that does not exist and we will probably not see that exist either. We can hope, but please don’t hold your breath waiting. Sorry for the rant, but it need to be said and more needs to be done.

Regards

Andrew Orr

-Women’s and Men’s Health Advocate

-No Stone Left Unturned

-The Endometriosis Experts

Expectation Versus Reality When It Comes To Hospital Emergency Departments

Posted on August 9, 2018September 7, 2019 by Andrew Orr

Before I start on this latest post, I do just want to say how amazing the people are who work in Accident and Emergency departments around the world. As someone who has a disease state that can be fatal, I know all to well how the amazing efforts at accident and emergency departments can save lives. I should know, because they have saved my life a few times I can tell you.

The reason for this post is that everyday I get messages from people in chronic disease state, such as endometriosis, and many of these messages often complain that they went to their local hospital emergency centre and they did nothing for them. Many of the messages are saying “I waited for hours in pain”, or “the emergency staff did nothing and then sent them home”, or messages such as “The didn’t fix me”

One of the things I always tell my patients is that if they are in pain, and it is after hours, or they cannot get a handle on their pain, then they should go to their nearest A&E (Accident & Emergency) and seek help. But I am also very clear with my patient’s expectation around what emergency centres are there for, or will do for them.

Accident and Emergency Centres at hospitals are there for exactly that; Accidents and Emergencies. They are there to help with people who have been in accidents, the critically ill, the dying, and those that require emergency assistance. Emergency departments are trained to assess who needs help now and who doesn’t.

There is a scale of who requires immediate help and who doesn’t. People who have been in near fatal accidents, people with open wounds, close to death, people having heart attacks, asthma attacks and anyone who could possible die from their suffering, will always be attended to first and if need be with be admitted and monitored accordingly. For the rest of the people it is simply this.

How bad is your pain?
How long have you had it for?
and could it possibly kill you if we leave it too long for you to receive care?

If the answer is that it isn’t going to kill you, but you are definitely in a lot of pain, you will receive treatment. When and how long that takes, compared to critical patients, all depends on how busy the emergency department is that night, or day.

What I do need to reiterate is that emergency departments jobs are to basically assess if your condition could kill you, then administer appropriate treatment, get you out of pain and then either send you home, or admit you if it is absolutely necessary. That is it really.

They are not there to fix your chronic condition. They are there to ease your pain, administer appropriate treatment, save your life if necessary, and then work out if they send you home, or send you to intensive care for critical monitoring, or admit you to the general wards.

If you are assessed properly and your pain etc, has been controlled and then sent home, what should happen then is that you should be given medications to control your condition when you get home, given an action plan and also a referral to your local GP, or healthcare professional to help you in managing your disease state, or pain state, properly. This is to ensure you get proper care. Sometimes you may even be referred back to the hospital you have just been to but to an appropriate department for your condition, or disease state.

But does this always happen like this?

Well, not always and it just depends how busy the emergency centre was and how far down their emergency scale you were. If you weren’t dying, it may seem like they are saying to you “we fixed you up, we helped your pain and then sent you on your way with no help”.

But in reality they have got you out of pain and then have administered appropriate care and treatment, but it may not just be in way your expectation was. Please just remember that A&E’s are there to help you get out of pain and then basically send you home, or admit you if needed. That is it really.

If your pain levels have escalated, or become acute, more often than not it is because your condition isn’t being managed properly, or as well as it could be.

Maybe the healthcare practitioner managing you just isn’t as educated on your disease state as you thought.
Maybe your medications are wrong.
Maybe you haven’t been taking your medications properly.
Maybe you have been self-prescribing too long and need to see someone for better care.

There could be many factors to why your disease state has flared

Could you flare up be due to stress, or emotional factors?
Are you sleeping properly?
Are you eating a proper balanced nutritional diet?
Have you been drinking too much alcohol?
Are you drinking enough water?
Are you exercising enough and moving the body enough?
Are you taking your medications properly?
Could you need surgical intervention?

There are so many reasons why disease states can flare, or pain cycles can start. Sometimes there is no answer to your pain, or disease state flaring.

As I have stated before, places such as the A&E (Accident and Emergency) are there to help people in chronic, or acute pain states and assess you properly to make sure everything is ruled out and then control your pain and have you managed accordingly.

Most of the time, if things are not critical they will send you home, but usually after making sure you are managed properly first. If this doesn’t happen, then you need to ask the questions as to why, and then ask questions of the powers that would be, if necessary. If you are truly in pain, then you should not go home and you need to voice your concerns as to why you need to be looked at further. Sometimes it really is “He/She who cries out loudest, gets heard”

If you do have a diagnosed condition such as endometriosis, it may be best not to let some A&E’s know you have this condition, due to them probably not going to fully understand your condition, and put you in the period pain basket, and probably not take you seriously.

I am not saying this happens all the time, but it does happen and I hear this often. But, just remember that A&E departments are specialised in some disease states such as endometriosis either, so you need to take that into consideration.

But they need to take into consideration that you are in pain and that it isnt just simple period pain, or you are being dramatic. If you weren’t in real pain, you wouldn’t be there.

So, just a precautionary word… don’t tell them you have endometriosis, if that is what your are there for. Let them do a proper assessment and control your pain first and if they work that out, then they have done their job anyway. If they don’t work that out, they will at least manage your pain and then try and work on why you are in pain. If necessary, they will admit you until they can work it out, so win win situation.

But, even after all this, if your pain, or disease state has reached its peak point, it means that you aren’t being managed properly, you need proper management, or you may in fact need surgical intervention, along with appropriate treatments and clinical management moving forward.

Once this is addressed then the following may assist you also:

Eat a healthy low inflammatory based diet
Make sure you address the emotional aspect of your health
Address stress levels
Make lifestyle changes
Address weight and body fat (lose or gain weight/body fat)
Drink adequate water and electrolytes to stay properly hydrated
Exercise and move your body to promote blood flow and circulation
Acupuncture may assist with pain
Herbal medicines and nutritional supplements may assist pain
Chiropractic care, or osteopathy care may assist
Do a mindfulness course, or learn some meditation
Get at least an hour of “You Time” daily
Take your medications as prescribed
Book in with your healthcare practitioner and get a proper pain management, or disease state management protocol going
Improved your gut health and microbiome
Be positive and look at positive words and affirmations
Stay away from negativity and negative people
See a pain management specialist if need be
See a counsellor, or psychologist
If something isn’t working, then change it. This may also mean changing the person you are seeing. It may also mean changing self, or self-beliefs.

Lastly, never self prescribe, or try to manage your own disease state. Nobody can manage their own disease state properly, no matter how much they know, or how hard they try. Always seek proper help and clinical management from a properly trained healthcare professional who specialises in your disease state

I hope this has helped everyone understand a little more about what emergency departments do, or are supposed to do, when it comes to pain and critical care.

We really do need to be aware of expectation, versus reality for this type of care and what emergency centres actually do. I also want people to know what they can do also need to be proactive in their disease states and helping manage their disease state and symptoms properly. With proper care and proper management, you truly can reduce symptoms, reduce pain, reduce flare ups and also live a fairly normal life as well.

Lastly, when pain does get too bad, or your are unable to control your disease sate properly, it means you need to get proper help and this also means seeing an appropriately trained healthcare professional to assist you in every aspect of your disease. Please do not try to do it yourself, or google it, or ask friends for advice.

Always see a healthcare professional who is trained to deal with your disease properly and administer appropriate care, treatment and management moving forward. If your current healthcare professional isn’t assisting your properly, I am the first person to tell people the value of a second, or tenth opinion.

If you do need help with a women’s health condition and are not being managed properly, then please give my friendly staff a call and find out how I am may be able to assist you.

Take care

Regards

Andrew Orr

– No Stone Left Unturned

– Women’s and Men’s Health Advocate

-The Endometriosis Experts

-The Women’s Health Experts