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Time to Set The Records Straight about Endometriosis, Period Pain & Other Gynaecological Issues.

There are so many misperceptions and wrong information out there about period pain and gynaecological conditions that cause period pain and it really gets annoying hearing people get told the wrong information and false information. It is time we get people the help they need and stop people having gynaecological conditions missed and being dismissed also.

So lets set the records straight

  1. Period pain is not normal, no matter what you have been told, or who has told you this.
  1. Period pain is often the sign of gynaecological conditions such as endometriosis, adenomyosis or other gynaecological issue. It could also be a sign of something more sinister.
  1. Women who have endometriosis and other gynaecological issues,  can also be asymptomatic (meaning no symptoms) so because you do not have pain, does not mean that you do not have it.
  1. With endometriosis, symptoms do not always correlate to the extent of the disease. Some women have only small visual pockets of it and this can cause extreme pain and inflammation, while women whom are riddled with it may have little, or no pain at all. It is not about the amount of the disease when it comes to pain profiles and classifications around pain and disease management. The classification system and grading system is just for a surgeons reference only and to gauge how much was found.
  1. Scans and blood tests cannot diagnose endometriosis. There are some specialised scans that can diagnose deep infiltrating endometriosis only, but even then, they are not 100% accurate, or a definitive diagnosis. There are very few people trained in this form of ultrasound too. Most women with endometrosis have the superficial disease, which cannot be diagnosed with specialised ultrasound , or normal ultrasound at all. Blood tests will definitely not diagnose endometriosis, or many other gynaecological issues either.
  1. The definitive diagnosis for endometriosis and other pelvic pathology is a Laparoscopy ( usually combined with hysteroscopy and dye studies) combined with histology (tissue from a biopsy). At the time of laparoscopy the visual disease is usually tidied up and removed at the same time, along with any adhesions and other pelvic pathology found.
  1. Not all gynaecologists, or surgeons can perform proper surgery needed for the removal of endometriosis, or other gynaecological issues. This requires an advanced laparoscopic surgeon to do this kind of work and not every gynaecologist, or surgeon has these skills.
    Many gynaecologists have very limited surgical skills when it comes to major gynaecological issues such as endometriosis. Just because someone has had surgery before, doesn’t mean they have had someone specialised to deal with the disease properly. This is a big mistake many people do not realise.

    You also always need to ask if the surgeon has advanced laparoscopic training and they excise (cut out) the disease, not burn it. You also need to ask their experience in treating and managing the disease state that you have been diagnosed with, or suspected of having.
    Some endometriosis may be so widespread it may need multiple surgeons, such as bowels surgeons, and in some cases it may need a gynaecological oncologist who can excise very fine parameters because of their training of cancer removal. Many women think they have had the disease removed when in fact their surgeon was unable to fully remove all the disease because it was out of their scope of practice.

  1. Teenagers are not too young to have endometriosis, or other gynaecological conditions. Early intervention and management of the disease is crucial and should not be left until later in life under any circumstances. Please do not let teenagers put up with period pain and have someone tell them it is normal.
  1. Surgery does not cure endometriosis. But it does help to control the spread of the disease and the inflammation because of the disease.Surgery can offer great relief from pain symptoms though. But the real treatment comes from trying to suppress the regrowth of the disease and microscopic implants (not visible to the eye via surgery) post surgery and this is what I do in my treatments.
  1. Pregnancy does not cure endometriosis, or period pain. In many cases, it can make it slightly better for a while, but most of this is due to women not having their period for an extended amount of time. It does not cure endometriosis and this is a widely spread myth that needs to be corrected
  1. Endometriosis is not an auto-immune disease. Lately there has been talk that endometriosis is an autoimmune disease because of its inflammation links. Yes, it is an inflammatory disease and reducing inflammation in the body will help it, but it is not an auto-immune disease and does not fit the classifications of an auto-immune disease either.
  1. Gynaecological conditions should be seen to by a specialist in that field and not just by a GP. While GP’s are a much needed part of healthcare, but they are just a general practitioner, they are not a specialist and a referral to a properly trained specialist should be obtained for any suspect gynaecological condition, or matters pertaining to period pain, or pelvic pain. This saves conditions being missed, or overlooked, or misdiagnosed
  2. Hysterectomy does not cure endometriosis. Most of the time endometriosis is outside the uterus and can be anywhere in the pelvic cavity. It can be on the bladder, the bowel, the fallopian tubes and it can even spread to anywhere in the body. Endometriosis has been found in the joints, around the heart, the brain and even in the eyes. Taking the uterus out is not going to cure endometriosis.

Lastly, Dr Google and many of the forums people use are not usually reliable sources of information, or a diagnosis for period pain, gynaecological conditions such as endometriosis, or any other gynaecological conditions.

Only a properly trained Reproductive Medicine Specialist, Gynaecologist, Fertility Specialist, or Women’s Health Medicine Specialist can give you proper advice and education about endometriosis and matters that pertain to women’s health.

Your next door neighbour, your friend, your Facebook buddies are not reliable sources of information, unless they are fully qualified healthcare professional. There are some good sites out there, but even so, you still need to get advice of a proper healthcare professional and not just some person on a forum, or internet site.

I hope this helps people understand the importance of the right information and education and seeing the right people and getting investigated and managed properly. I see so many people have things missed, dismissed and overlooked and I just want to help people get the right advice and right treatments and be given the right information to save people on the heartache that many I have seen have had to endure.

My motto will always be that “Period Pain is Not Normal” and my other motto is “Leaving No Stone Left Unturned” when it come to healthcare and helping people. If someone tells you period pain is normal, or you have to put up with it, or suck it up, you are seeing the wrong person, so please then go and see someone else.

If you would like to book in a consultation with me, please call my friendly staff, or using the automated emails system on the website. Let me hold your hand and care for you and assist you in every step of the way to better health and a better way to live daily.

Take care

Regards

Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Advocate

-Period Pain is not normal

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Follow-Up Reply To Rust Never Sleeps & Neither Does Endometriosis

After my post on “Rust Never Sleeps and Neither Does Endometriosis” I was overwhelmed with such lovely messages from some amazing people

Wow, there really is so many people out there suffering this horrible disease. As I said, I had someone very special and dear to me that was riddled with Endometriosis and put up with it for 20-30 odd years. It was so bad and luckily I was able to help her get it sorted properly.

I help people with endometriosis everyday. I know how it effects you physically, emotionally and on every level possible. It is such a terrible disease to have. I also know many people who have it don’t know they do have it until that start to try and have a baby. Then they come and see me and we find it. Many people are asymptomatic (no symptoms).

Unfortunately when it comes to endometriosis we really only hear about those who have the really have the bad pain. Unfortunately so many of you who have read this, or have contacted me about this, have the pain side of it.

But please take heart, you can get your life back with the right treatment. I do know many of you aren’t seeing the right people, or not getting the right treatment for this. So many of you get overlooked, or passed over, or misdiagnosed, or even just plain old ignored. It is disgusting and should never happen

Endometriosis really does require a multi modality approach to treat it and help manage it properly though. There really isn’t one thing, or a magic pill. I wish there was. I wish I could give you all that.

Through many years of studying this, years of treating this and just knowing what to do and what works and what doesn’t, is why I know this disease well. Endometriosis needs a multimodality/team approach to manage it effectively.

There is no magic pill. You really do need to look at the individual, assess that individual and then use a multi modality approach with everything from diet changes, lifestyle changes, help with emotions, help with the acute pain etc and really look at what is fuelling the pain and fuelling the endometriosis. The number one diagnostic and investigation for endometriosis and to help with acute pain will always be a laparoscopy too.

I do know it is hard for you all. I really do. Not everyone knows how to treat this properly and manage the symptoms properly as well. I wish they did. I really do. I know many of you have said you have tried everything and many times I find out your haven’t, or may have only just tried a few things in combination. You need to do it all properly and at the same time.

Some of you have really just seen the wrong people, been given the wrong advice and really just seen a crappy specialist, or surgeon. It really saddens me. So sorry for you that have. I really wish I could help all of you.

I do know many women who say they got relief from the hysterectomy and I have to say I sometimes have to tell people that only they can make this decision,  if it is really affecting your life. But I do need to let women know that hysterectomy ‘Does Not’ cure endometriosis. It will cure adenomyosis, but not endometriosis. Endometriosis is not in the uterus, so taking out the uterus is only going to help adenomyosis and also stop period related symptoms.

But if you are going to have a hysterectomy you need to know the facts and know that endometriosis will still be there.Sometimes the endo has really spread to other parts of the body so hysterectomy really doesn’t solve that at all.

If you are going to do any surgical intervention, it needs to be done by a good surgeon who is an advanced trained laparoscopic excision surgeon. It also needs to be done intravaginallly and via laparoscopy. That is how I make sure my patients get it done. Sometimes that is not always possible, but when it is, that is the better option.The recovery is much better and there is less impact on them and their body. It is hard to make those decisions though.

It is hard to help from afar, but if you do want my help, I do online consults so I could help you. I do help and assist people all over the world and online platforms (zoom, skype) now offers a medium to do that.

I can’t give advice over the internet because of legal and professional ethical reasons, so I do need to see people, or at least Skype them to be able to give advice. It needs to involve a consultation.

It is so much easier if I can see you in person, especially those that live here in Australia. Flights are cheap these days and I have the best surgeons and team working with me. I really do have the best endometriosis surgeons as part of the team I work with.

I know how hard this must be for you, a very special loved one had very bad endometriosis as well. Luckily now, with the right treatment and after 30 odd years of getting nowhere, she is finally feeling better.

If you would like to book in a consultation with me, please call my friendly staff, or using the automated emails system on the website. Let me hold your hand and care for you and assist you in every step of the way to better health and a better way to live daily.

Please take heart. Know that you are not alone.Know that there really is help out there. I know this disease can be beat with the right treatment. Know that I hear you and what you are going through and will always be here to help educate people about this disease and hopefully find a cure to this horrible disease one day.

Looking forward to helping you if you need my help and pointing you in the right direction

Regards

Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Advocate

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Rust Never Sleeps And Neither Does Endometriosis

Rust never sleeps and neither does endometriosis. When rust gets into a piece of metal, it starts to slowly eat away and corrode its unsuspecting host. Nobody really knows where it will pop up next. At first the tiny implants of rust cannot be seen, but underneath the layer of metal, the rust is at work, slowly devouring and eating away at the core of this metal piece.

It is like a weed. You can cut it out, poison it, and do what ever you can to prevent its return, but once it is there and those minute little seeds have shed and spread, not matter what you seem to do, it seems to just keep popping up everywhere. I have explained this in another post called “Weeding Out Endometriosis”

It is silent and can often take years to take full affect and be visualised, but once it is there and it full swing, it causes weakness, corrosion, toxicity and all manner of havoc for the piece of metal it has now invaded. Just because you cannot see it, doesn’t mean it is not there either. It is the master of stealth, but eventually is will rear its ugly head everywhere, all the while it is has been working its way underneath the surface and its endless tentacles and teeth reaching out and eating at the very core of its host. As the famous musician Neil Young once said “Rust Never Sleeps”. It is perfect assassin for it needs no sleep, and it has a mission of destruction and chaos to anyone who stands in its way.

While rust may never sleep, neither does Endometriosis. Endometriosis is just like rust. It is also like a pesky weed, with a never-ending lifecycle. It spreads; it drops seeds (implants) everywhere it goes. It causes pain, it can be silent and with stealth and at the same time, spreading without causing a single ounce of pain for a significant portion of the population. All the while it is causing havoc in other parts of the body, creating the illusion that there must be something else there.

It is the master of illusion. It makes many think it is something else (IBS, Bladder issues, UTI etc). It invades without a trace and can even be the master of disguise, evading even the most notable physician, but all the while it is feasting and causing chaos under the surface, just as rust does.

Just like rust, sometimes you can cut out a small piece of it and get every single minute part of it at the same time. Other times you can cut it out, and then underneath the microscopic, undetectable implants just pop up somewhere else and starts its vicious lifecycle in another location. Some times it can hide altogether, yet still be there under the surface causing havoc. Other times it will present itself to be seen everywhere and scatter itself so far and wide, you will never ever catch up with all of it.

While sometimes the smallest amount of it can cause immeasurable pain, sometimes the largest amounts of it will go undetected and cause no pain at all.

Actually, a significant portion of women affected with Endometriosis will have no pain at all. We only hear of the women with pain and this is totally understandable. But we also need to let people know, many have no pain at all. It isn’t until the person is investigated properly (via a laparoscopy), that they find that they may be riddled with it.

Endometriosis just isn’t in the endometrial lining. It is most outside the uterus, or embedded deep into the endometrium. It can get on your tubes, in your vagina, on your bowel, into your intestines, up into your lung, around your pericardium and heart, into your brain and they have even found it in people’s fingers. It is truly like a weed, like the rust we started talking about. It can spread everywhere and as said before, can evade even the most noted medical mind. If you don’t know what you are looking for, it will try and evade you forever.

But like rust, with the right treatment, Endometriosis can be found, captured, seen for what it is, have its true colour exposed, have its weakness exploited and have its symptoms vanquished to the nether regions of the destructive world it appeared from. Yet, many fail to explore, or implement the right treatment, choosing to mask it, or pretend it has gone, and all the while it is being allowed to inflame, fatigue, cause pain, play with your emotions and basically wish that life as you know it would magically just end. This can be the life of many who unknowingly trust that just cutting out the rust, or trying to mask the symptoms of it, without destroying and preventing the tiny implants of it underneath the surface from appearing and taking hold again.

Like any disease, prevention is the key to treatment. You cannot prevent endometriosis (not yet anyway) but you can prevent the things that can make it flare, or make it grow, or make it worse. Take away the fuel, and the fire can never take hold. The same goes for endometriosis. You need to take away the foods and substances (alcohol, smoking, chemicals is the environment) that are fuelling the endometriosis to grow in the first place.

If the endometriosis has taken hold and is causing issues, you need to then have it cut out and removed. There is a point where no matter what medications etc you take, nothing is going to settle that inflammation and pain down and well and corrective and investigative surgery. The only way you can diagnose endometriosis is through a laparoscopy. Scans and blood test do not diagnose it.

Even sometimes with surgery, endometriosis can be invisible to the naked eye, but make no mistake, it can still be there. This is why biopsies are taken to see if the microscopic implants are there causing pain and havoc, underneath he surface. But even then, it can infiltrate deep into the muscles and around the nerves to remain undetectable, even via a biopsy. But make no mistake, at some stage, it will rear its ugly head to be seen and to be heard. For those that know the symptoms, they will know it is there, when all other measures of investigations fail.

Once the visible disease is found, it needs to be removed and then you need to try and prevent its return. The only way you can do this is suppress the microscopic implants and the very thing they feed off. Never make the mistake of thinking that surgery is where all your treatment ends. It isn’t. This is where the real work begins.

While estrogenic response is a know factor and the main driver, we also know that insulin feeds inflammation and also causes problems with estrogen and hormone metabolism and distribution. If you get the diet under control, reduce the inflammation through lack of insulin and sugars, then you also help regulate the hormones and this will help with the symptoms and growth of endometriosis. You need to eat as clean as possible and this no refined foods at all. Lots of proteins, nuts and seeds, fresh fruit and vegetables, good oils, pre and probiotics and water.

Herbal medicines may assist and also help control with the control of the microscopic implants of endometriosis and also help symptoms. They can also assist and help with hormone regulation and help with insulin resistance and also help with reducing inflammation. This is why the Royal College of Obstetricians and Gynaecologists recommend women explore the use of herbal medicines and acupuncture and part of the overall treatment plan for the guidelines of treatment of endometriosis.

You also need to look at stress and emotional factors that are driving the inflammation in the first place. Learn some coping skills, learn to relax, find that quiet time, do some yoga, or some form of relaxation. Do whatever it takes to find that stillness in your daily life. You can’t treat and manage a disease without looking at the emotional and lifestyle component of it as well.

So, before you go and try and mask the symptoms of endometriosis and the actual diseases itself, with the pill, mirena, or other current medical approach, ask yourself this. What are you doing to prevent the drivers of the disease in the first place?

Endometriosis requires and multi-modality approach to treat and manage it effectively. If you don’t take this approach, then it will nearly always come back. Yes, you need to surgery, but, you still also need to prevent and treat the actual cause of the disease in the first place. This will then treat the microscopic implants from ever coming to life and causing more misery for everyone concerned.

Having a loved one riddled with endometriosis, I am going to do everything possible I can to help prevent the return of symptoms of this horrible disease for this most cherished and loved individual. A multimodality approach will be used and I hope that one day we can eventually take control and assist in vanquishing the symptoms of this disease into oblivion where they belong, like I have done for so many other people in my years of practice. But, with any disease it also requires compliance of the patient too.

There is no cure for endometriosis, but with proper assistance and the right treatments and health management, women can become asymptomatic (no symptoms) and live a normal life away from the symptoms of this horrible disease.

What are you doing to control your endometriosis?

Do you want to just mask it, or get proper help in managing it?

If so, you need to implement a multimodality approach that I mentioned above and help with having a normal life and hopefully be symptom free. I will mention some of the multimodality treatments in future posts.

Just remember, rust never sleeps and neither does endometriosis.

Take care

Regards

Andrew Orr

-No Stone Left Unturned

-Women’s and Men’s Health Crusader

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